We've listed some useful links to epilepsy related charities in the groups below. Please click to find out more.
USEFUL LINKS
KEY FACTS
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Epilepsy is a condition that affects the brain, causing repeated seizures
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Anyone can have a one-off seizure, but it doesn’t always mean they have epilepsy
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People are usually only diagnosed with epilepsy if their doctor thinks there’s a high chance they could have more seizures
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Epilepsy can start at any age and there are many different types
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Some types last for a limited time, but for many people, epilepsy can be a life-long condition
Source: www.epilepsy.org.uk
HOPE
ANTI-SUFFOCATION
PILLOW PROJECT
HOPE for Epilepsy is delighted to supply pillows to children and young people with epilepsy living in the UK for free, the guidelines below explain the criteria for gaining a pillow.
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The child must have a diagnosis of epilepsy excluding for example Non-epileptic attack disorder as a singular diagnosis, febrile convulsions in under 5 years olds. A clinic letter from your doctor should be included in the email you send to us (a photo of the letter is sufficient if the diagnosis can be read clearly).
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1 pillow can be claimed for each young person with epilepsy.
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The child must have had seizures in the last year to qualify for a pillow.
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There has to have been at least 1 seizure previously at night in the history of the child’s epilepsy.
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The child must be 19 years and under.
Please send us your details and attach your clinic letter scanned or photographed, we will aim to reply to you and give you confirmation within a week of you submitting your request, if you do not hear after one week please contact us on :
info@hopeforepilepsylondon.org.uk
We do have a limited supply of pillows available and cannot always meet demand. Therefore if you wish to buy one then they are available to buy at https://www.sleep-safe.co.uk/bnhl/ where there is a 22% discount off of the price of pillows for visitors to the HOPE for Epilepsy website.