WHAT WE DO
HOPE FAMILY SUPPORT SESSIONS
Our HOPE Family Support Sessions provide a safe space for families to socialise, reduce isolation, build relationships, share information, access support and guidance and most importantly for children to have some fun!
The sessions are held once a month on a Sunday from 2-4pm at Oakleigh School in the London borough of Barnet. We provide lunch, courtesy one of our fantastic supporters, as well as entertainment for the children. With the support of our volunteers, children are encouraged to explore the fantastic facilities we have available at Oakleigh school. These include a soft play room, craft tables and adapted playground with climbing frames, trikes and various outdoor games. Teenagers can hang out, watch a film, play on the Wii, use the art resources and chill in the quiet spaces. There is even the opportunity for teenagers to volunteer to set up a HOPE Family Support Session, find out more in by contacting us.
These sessions are also a much needed chance for parents to meet other parents, talk to some of our medical experts or to have a bit of respite while our volunteers entertain the children and maybe even have a little pamper at the nail bar.
For HOPE Family Support Sessio dates please go to our EVENTS calendar.
HOPE FAMILY DAY TRIPS
We also organise daytrips throughout the year to exciting venues local to the London area. So far we have been lucky enough to visit Legoland Windsor, London Zoo, Diggerland, The Science museum. We know that outings can sometimes be stressful or overwhelming for our children and families, so we work closely with the venues to make sure that the visit is as seamless as possible. Check out our GALLERY page to see some of the fantastic days out we've organise.
The whole family are welcome, please go to our EVENTS calendar for upcoming dates.
HOPE
ANTI-SUFFOCATION
PILLOW PROJECT
HOPE for Epilepsy is delighted to supply pillows to children and young people with epilepsy living in the UK for free, the guidelines below explain the criteria for gaining a pillow.
-
The child must have a diagnosis of epilepsy excluding for example Non-epileptic attack disorder as a singular diagnosis, febrile convulsions in under 5 years olds. A clinic letter from your doctor should be included in the email you send to us (a photo of the letter is sufficient if the diagnosis can be read clearly).
-
1 pillow can be claimed for each young person with epilepsy.
-
The child must have had seizures in the last year to qualify for a pillow.
-
There has to have been at least 1 seizure previously at night in the history of the child’s epilepsy.
-
The child must be 19 years and under.
Please send us your details and attach your clinic letter scanned or photographed, we will aim to reply to you and give you confirmation within a week of you submitting your request, if you do not hear after one week please contact us on :
info@hopeforepilepsylondon.org.uk
We do have a limited supply of pillows available and cannot always meet demand. Therefore if you wish to buy one then they are available to buy at https://www.sleep-safe.co.uk/bnhl/ where there is a 22% discount off of the price of pillows for visitors to the HOPE for Epilepsy website.
ONGOING
SUPPORT
&INFORMATION
Our team is made up of parents of children affected by epilepsy and epilepsy professionals including medical professionals from Great Ormond Street Hospital, University College London Institute of Child Health, St Georges Hospital London, Cambridge University Paediatric Society, genomics expertise via Genomics England and Young Epilepsy. We have a fantastic team of parent-to-parent support including an educational professional,
who are there to advise or simply listen to parents who are in need to speak to someone who understands. We offer ongoing support to families through our monthly support sessions, website, social media, email and phone calls.